The following links to other web sites are intended to educate and inform about Lesch-Nyhan Disease (LND) and other relevant information. Please be aware that when you access one of the links listed in this section, you will be leaving the Michael Papaioannou Fund web site.

Although we try to monitor the accuracy of links to these sites, if you discover a broken link or otherwise incorrect URL, please let us know. Additionally, if you know of a resource that might be of benefit to others, please share your information with us as we would be like to add it to this page.

Lesch-Nyhan Disease Registry

National Organization for Rare Disorders

National Institute of Neurological Disorders and Stroke

eMedicine, Pediatric Neurology

Genetic Information and Patient Services, Inc. (GAPS)

Health A to Z


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